Websites & Organizations
American Dystonia Society
A newly formed group, whose goal is to reduce/eliminate overhead, channeling more funds directly to research.
Dystonia Medical Research Foundation
Founded in 1976, the Dystonia Medical Research Foundation (DMRF) is a 501(c)3 organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia
WeMove.org
The WE MOVE™ Web Site, the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web.
Care4Dystonia, Inc.
Care4Dystonia is a nationwide community-based health organization dedicated to Setting the PACE: Patient Care, Awareness, Collaboration and Education for the dystonia community and the general public.
Bachmann-Strauss Dystonia & PD Foundation, Inc.
The Bachmann-Strauss Dystonia & Parkinson Foundation was established in 1995 to find better treatments and cures for the movement disorders dystonia and Parkinson's disease and to provide medical and patient information.
DRD Central
Really, the only specific presence for Dopa-Responsive Dystonia
National Institute of Neuro Disorders and Stroke
Dystonia Information
Beery Family Dystonia Information
Older site, DRD affected family
National Spasmodic Torticollis Association
The mission of the National Spasmodic Torticollis Association is to support the needs and well being of affected individuals and families...
Spasmodic Torticollis Dystonia
Providing hope for your future (site includes forums)
Disability.gov
Connecting the disability community to information & opportunities
The Movement Disorder Society
We are an international professional society invested in the research and care of patients with Movement Disorders
