prime time Dystoniacs' Club
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Full Name:
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Use your real name here. You can specify an alias later.
Member Alias
If you would like to be called something other than your name, list it here.
Age
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Knowing your age helps us make appropriate matches.
Birthdate
This is optional. However, if you share your birthday, you can receive a birthday card.
Contact Info
Phone/TTY
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We need this in order to verify your enrollment. If you do not have a phone number, contact us.
Email
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Your email address is private and will not be shared with anyone.
Mailing Address
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A valid address where you receive mail
Address 2
City
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State
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Zip
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Country
Special Days
I celebrate (select all which apply)
Birthday
Thanksgiving
Jewish Holidays
New Years (Dec.31-Jan1)
New Years (Chinese, Lunar)
Kwanzaa
Christmas
Other holidays, et c.
Enter other special dates here, seperated by commas
Diagnosis
My official diagnosis includes
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Cervical Dystonia
Blepharospasm
Oromandibular dystonia (cranial dystonia)
Laryngeal dystonia (spasmodic dysphonia)
Hand dystonia (writer’s cramp)
Multifocal
Early-onset generalized
Psychogenic dystonia
Dopa-responsive dystonia
Myoclonic dystonia
Paroxysmal dystonias and dyskinesias
parkinsonism
I use the following adaptive equipment
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Helps us match you...
Other instructions/preferences
Other instructions/preferences
I agree not to share information about other participants.
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I agree not to transmit anything hurtful, demeaning or bigoted while a member of the Dystoniacs.
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I understand that participation in this program means I will send and receive traditional mail to/from another member if/when I am matched to a pen-pal. I want to participate and intend to send at least one letter/card/package to my pen-pal every 90 days. I understand If I am not able to do this, I should inform ptDystoniacs asap.
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In addition to adding my name to Dystoniacs' Club, include me when you send a periodic email.
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Please select...
Yes, please do!
No, thank you. Only club related materials.
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